It’s been a pretty low-key week for me. I made the mistake of going on Twitter last Monday, and I got caught up in a roiling, churning mass of conflict that ended up in me muting a handful of people I used to follow, but who had become pretty aggressive and dismissive in their attitudes towards people like me.
Yeah, no thanks. I really don’t need to be told I don’t deserve full respect and consideration — not to mention the benefit of the doubt — by people who share my neurotype. To say I was disappointed, would be an understatement. I just couldn’t believe that people who base much of their online identity on measurable difficulties with socialization and communication and (ahem) empathy, would just say whatever came to mind without realizing that their self-proclaimed limitations were in full-swing… and act accordingly. And as for folks who know as a matter of fact that autistic people are intensely sensitive… but still press ahead with hurtful, exclusionary statements (which are obviously opinions) as though they were God’s Truth… I just can’t even…
The net effect was that I went underground. Not literally, though I wish I could have. I just pulled back. Stayed out of interactions on Twitter. Muted more people. Expanded my social filter settings to screen out the virtual screaming. And went about my life.
Things haven’t been all that great with me, over the past weeks. I’ve been through a number of upheavals at work and at home, and not getting to go to my nephew’s wedding in 3 weeks is really bothering me. There’s no way I can make the trip down to Baltimore in mid-August (August!), deal with the whole loud crowd of my family, the unfamiliarity of the situation, the social requirements, the logistics around travel and making sure my partner is okay while I’m away. She can’t make the trip, herself — mobility issues, not to mention the overwhelm for her, as well. It just all feels so overly demanding.
And then there’s the conflict around my nephew’s own spectrum-y self. He struggles with many of the things that I do, but I can never seem to get through to him. He seems to be afraid of me. And yeah, I have been a scary person in the past — especially when growing up. His mom (my sister) still has a ton of issues towards me. Old resentments, hatred, conflicts about any number of things I said, did, or simply was, while we were growing up. Her eldest two kids (who seem pretty spectrum-y to me) seem to have inherited a lot of those issues towards me. And they’re either standoffish towards me, or they take me to task.
Everybody in my family seems to enjoy taking me to task. They seem to think I do the “boneheaded” things I do on purpose. Not much tolerance or leeway there. But then… Aspies. With their black-and-white thinking. And God help you, if you stray outside their range of acceptable thought/behavior… which I constantly do. They still criticize me for not finishing college, even though they actually contributed to the issues that overloaded me and sent me into an agoraphobic tailspin for years after I had to leave university. As far as they’re concerned, I’m just lazy. Defiant.
All around me, it seems like people are just living their lives, getting on with things, living up to their potential. And the best I can manage is getting up each day, going to work, keeping up with my responsibilities, and being reasonably effective at the limited range of things I do. I looked into going back to school, a few months back, and it looked promising. Do-able. Even affordable (because my work offers tuition reimbursement). But when I thought honestly about it, the idea of being locked into a certain course, being forced to take courses at a pre-established pace, in a pre-established order… and not having any leeway in terms of taking a break or getting some space to regroup (once you start, you can’t stop for 2-1/2 years)… it just wasn’t possible. From one week to the next, I never know how I’m going to feel, and with all the real-world responsibilities on me — working full-time, caring for a dependent spouse, being a member of a town board, taking care of the house, helping with a variety of extra activities, and taking care of myself with my requisite activities that soothe and center me — there’s just no way I’d have the energy or the resources to add part-time school to the mix.
I will say, though, that it hasn’t been completely dismal for me. There have been some bright spots. I’ve been reading more, lately. Writing more, too. Studying and checking out (free) online courses I can take. For the sheer love of learning. At my own pace. I’ve got some new foci for my intense areas of specialization, and that’s good.
At least I have that.
Well, not “at least”… actually, it’s pretty awesome, these “new” interests, which are really rekindling of old interests. Anatomy. Lots of anatomy. Cellular, too. And biochemistry. For someone who never finished university (four years, but no degree), I know a sh*t-ton about this stuff. Autonomic nervous system. Nervous system in general. It might not do me much good, academically, but it sure comes in handy in everyday life. Just knowing the difference between fear and anxiety has been a huge help for me.
And that’s what it all comes down to. Helping myself. Because others can’t. I’m pretty much beyond help from others, as far as I’m concerned. My needs and difficulties don’t “synch” with others’ expectations of me. I’m slow where others are fast, and blazing fast where others are slow. So, color me out of place. Perpetually. I’m “sub-clinical” when I’m in decent shape. And when I’m struggling, I often feel like such a disappointment to others (who expect me to be “high functioning”) that they just punish me for showing my vulnerability.
Yeah, I’m pretty much beyond help, in terms of other PNT (predominant neurotype) people. The mainstream has no clue what to do with me, aside from blaming and shaming me. So, never mind them. Life’s too short to spend hassling over those folks. I can help myself. In some really significant and meaningful ways.
That’s what I’m dong, these days. Helping myself. Digging into the things I love with all my heart, without getting bent out of shape over not being able to do them more often (or professionally). I’m still not happy about not getting to do the things I really want to do… weddings, university courses, etc… and I shed my share of tears over them. But that shouldn’t stop me from doing — and loving — the things I can do… sequestering myself with my anatomy atlases and researching furiously online … at my own pace, on my own time, in my own way.
It’s not all good, but enough of it is, to make it well worth it.