Some research papers on autistic women / late-in-life diagnosis

Picture of women from all over the world - many pictures from different areas, combined in a checkerboard display of diversity
Picture of women from all over the world – many pictures from different areas, combined in a checkerboard display of diversity

Here’s a running list of research papers I’ve found on autistic women and/or late-in-life diagnosis. I’m not a fan of the “disorder” or “with autism” language, but that’s mostly what we’ve got from the research, thus far.

Additional resources / writing / podcasts about “late-diagnosed” women

If you have others you’d like to recommend, please let me know – comment below.

I need to have a decent list to share with people (including my own healthcare providers). And if others can have access to a list of decent, current research on women on the spectrum, so much the better.


4 thoughts on “Some research papers on autistic women / late-in-life diagnosis

  1. Catana

    When they say “late diagnosis” that isn’t really what they mean. One of your links refers to girls and women from 22 to 30, and it’s pretty typical. Forget that there are women in their 50s, 60s, and possibly even in their 70s, who discover they’re on the spectrum. How they coped, what they’ve learned, what they can offer — not important.

    Liked by 1 person

    1. VisualVox

      White,. I think that their timeline is really centered around early childhood, even at toddler age. Anything after age 15, they may consider late diagnosis.


  2. What I’d like would be especially in regards to medical (and so called “mental health” or their current rebranding “behavioral health”) environments, communication tips.
    Like how on earth am I supposed to communicate with medical people? The doctors always interrupt, the people touch your body without consent and so on. Add medical terminology being so disgusting and degrading (they use the word “discharge” to talk about people? Pus, blood and periods are discharge, people aren’t).
    I’ve met doctors with so shitty bd manners they have talked to my “caregiver” about me right in front of me. Hello?! I can hear you speak, I can hear from your stupid questions you must be the doctor… where is this procedure going wrong when they don’t even talk to the “px” directly? Am I supposed to be more submissive? Is my problem simply being a foreigner and suffering from a bodily femaleness? Add a long list of frustrations, and I avoid medical environments (excluding eye doctors) like the plague. I hate being talked down to, being interrupted, being poked and touched, having to fill in dozens of pages of stupid paper questionnaires (nope to that too) and then just be passive and submissive to them, treating them like some sort of gods who don’t make mistakes. All medical environments are especially stressful (people, doctors, touching, lights, sounds, smells so everything possible), so anything making them less stressful would be good. As would finding a better way to communicate with them, and to – some day perhaps – even being able to find an aspie/disability-friendly doctor.

    Liked by 2 people

    1. VisualVox

      Sheesh – that’s pretty miserable. Sorry to hear you had to endure that. But just think – what doesn’t kill you makes you stronger… 😉 So, you’re superhuman, right about now.

      I concur from personal experience that suffering from femaleness is a huge issue in the medical field. Unfortunately, I haven’t found female doctors to be a whole lot better. They seem just as impaired as the male doctors — maybe moreso, given the years of dismissal and wrangling w/ a male dominated field they’ve probably had to go through. If only they were superhuman. But alas…

      OMG, bedside manners – what a horror show. I was with a loved one at an emergency room because they were having seizures. The ER doctor was such an unbelievable dick – he was so dismissive and skeptical, even when my loved one had a seizure right in front of him. Nice. </more sarcasm>

      It would be nice if there were a register or directory of aspie/disability-friendly doctors – especially ones who can actually treat anybody they see (and I mean anybody) with respect and regard, as someone who has as much right to draw breath as they.

      Oh, if only… But until then, it’s all about preparing as well as possible in advance, and then just getting through it.

      Liked by 2 people

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